New Health Passport gives children a voice when visiting hospital | Pasport Iechyd newydd i roi llais i blant pan yn ymweld ag ysbyty

My Health Passport is a new way for children and young people with learning disabilities or complex health needs to share important information about themselves when accessing care in Hywel Dda University Health Board.

Developed by Donna Richards, Wellchild Nurse, Janet Millward, Senior Paediatrics Manager, and kindly produced by WidgitHealth, My Health Passport is a simple but important document that will empower children and young people and their families to communicate their needs, wishes and values to those caring for them.

Using Widgit symbols, the passport contains three sections; things you must know about me; things important to me; and my likes and dislikes.

George Owen from Llandysul is four years old and suffers from a very rare gene mutation which causes medication resistant epilepsy. Along with other problems, as a result of the seizures, George also suffers from temporary paralysis.

George, mum Kirsty and dad Stephen are one of the first families to receive the new health passport. It is theirs to keep and show hospital staff when they meet George.

Kirsty, said: “George’s condition is rare and this passport will help staff understand his condition and treatment but most importantly it will let them learn more about George and what is important to him.”

Lilly Kendall from Llanelli is 12 years old and has lived with complex heart and lung conditions since she was 10 days old, resulting in a heart and lung transplant last year.

During the course of her young life, Lilly has needed care and treatment at many different hospitals including Glangwili Hospital, Bristol Children’s Hospital and Great Ormond Street Hospital.

Lilly has been presented with one of the first copies of the health passport to keep with them whenever she visits hospital.

Lilly, said: “This will help everyone know a bit more about me and know what I’ve been through as I am pretty unique. This passport will help me have my voice in hospital and be 100% involved in decisions that involve me, because I know so much about my condition and I’m happy to talk about it.

“I want people to know that I’ve got a story to tell and I’m always happy to share it.

I hope that when I am admitted to Great Ormond Street, Glangwili and University Hospital of Wales that everyone knows that I literally like to know everything.”

Cai Griffiths from Glanamman is eleven years old and lives with Spinal Muscular Atrophy (SMA), a genetic disorder that results in the loss of motor neurons and progressive muscle wasting.

Cai, said: “I enjoyed filling in this passport and I think that the benefits are doctors, nurse and play staff understand me and my needs.

“This passport will help me have my voice in hospital and not have decisions made for me.

“I hope that on future admissions to hospitals that the team know that I like to know what’s going on and want to be prepared for procedures.”

Janet Millward, Senior Paediatrics Manager, said: “We are thrilled to be able to provide children and young people accessing our services with their very own passport, something driven forward by our learning disability champions.

“Letting our staff know their wishes, values and daily routines will help us do what we can to meet their needs which we hope will make a significant and positive impact on their time in hospital.

“Anybody who feels their child may benefit from having a passport of their own can download it free of charge from WidgitHealth’s website.”

Whilst My Health Passport is designed with hospital services in mind, it can also be shared with other support used by the child or young person, such as schools and community support.

Maria Battle, Chair of Hywel Dda UHB, said: “Children and young people with learning disabilities and complex health needs often visit hospital for planned and emergency reasons, meeting many different staff in many different services.

“Sharing the passport when visiting hospital will help our doctors, nurses and other healthcare professionals know what they need to do to make the visit as comfortable as possible.

“I’d like to thank Donna and Janet for their work to get this invaluable resource in place and to WidgitHealth for their generosity and support throughout its production.”

My Health Passport is available as a free download in English and Welsh from https://widgit-health.com/downloads/my-health-passport.htm

Pasport Iechyd newydd i roi llais i blant pan yn ymweld ag ysbyty

Mae Fy Mhasport Iechyd yn ffordd newydd i blant a phobl ifanc sydd ag anableddau dysgu neu anghenion iechyd cymhleth i rannu gwybodaeth bwysig am eu hunain pan yn defnyddio gwasanaethau gofal Bwrdd Iechyd Prifysgol Hywel Dda.

Datblygwyd y pasbort gan Donna Richards, Nyrs Wellchild a Janet Millward, Uwch-reolwr Pediatreg, a chynhyrchwyd yn garedig gan WidgitHealth. Mae’n ddogfen syml ond pwysig a fydd yn grymuso plant a phobl ifanc a’u teuluoedd i rannu eu anghenion, eu dymuniadau a’u gwerthoedd â’r rheiny sy’n gofalu amdanynt.

Gan ddefnyddio symbolau Widgit, mae’r pasbort yn cynnwys tair rhan; yr hyn y mae’n rhaid i chi ei wybod amdanaf; yr hyn sy’n bwysig i mi; a yr hyn yr wyf yn ei hoffi a’r hyn nad wyf yn ei hoffi.

Mae George Owen o Landysul yn bedair oed ac yn dioddef o fath o fwtadu genyn prin iawn sy’n achosi epilepsy sy’n gwrthsefyll meddyginiaeth. Ynghyd â phroblemau eraill, o ganlyniad i’r ffitiau, mae George hefyd yn dioddef o barlys dros dro.

George, ei fam Kirsty a’i dad Stephen yw un o’r teuluoedd cyntaf i gael y pasbort iechyd newydd. Nhw sy’n cadw’r pasbort a’i ddangos i staff ysbyty pan maen nhw’n cwrdd â George.

Meddai Kirsty: “Mae cyflwr George yn un prin a bydd y pasbort hwn yn helpu staff i ddeall ei gyflwr a’i driniaeth, ond yn bwysicaf oll, bydd yn caniatáu iddynt ddysgu mwy am George a’r hyn sy’n bwysig iddo.”

Mae Lilly Kendall o Lanelli yn 12 oed ac wedi byw gyda chyflyrau cymhleth y galon a’r ysgyfaint ers yn 10 diwrnod oed, gan arwain at drawsblaniad calon ac ysgyfaint y llynedd.

Yn ystod ei bywyd ifanc, mae Lilly wedi angen gofal a thriniaeth mewn nifer o ysbytai gwahanol yn cynnwys Ysbyty Glangwili, Ysbyty Plant Briste ac Ysbyty Great Ormond Street.

Mae Lilly wedi cael un o’r copïau cyntaf o’r pasbort iechyd i’w gadw a’i ddefnyddio pan yn ymweld ag ysbyty.

Meddai Lilly: “Bydd hyn yn helpu pawb i wybod rhywfaint amdana’i a’r hyn rwyf wedi bod trwyddo – rwy’n eithaf unigryw. Bydd y pasbort hwn yn fy helpu i ddefnyddio fy llais yn yr ysbyty a bod yn 100% rhan o benderfyniadau sy’n ymwneud â mi. Rwy’n gwybod cymaint am fy nghyflwr ac rwy’n hapus i siarad amdano.

“Rwyf am i bobl wybod fod gen i stori i’w ddweud, ac rwy’n hapus i’w rhannu.

Gobeithio ‘nawr pan gaf fy nerbyn i Ysbyty Great Ormond Street, Ysbyty Glangwili ac Ysbyty Athrofaol Cymru y bydd pawb yn deall fy mod i’n hoffi gwybod popeth.”

Mae Cai Griffiths o Glanaman yn 11 oed ac yn byw gydag Astroffïa Cyhyrol yr Asgwrn Cefn, anhwylder genetig sy’n arwain at golli niwronau motor a gwastraff cyhyrol graddol.

Meddai Cai: “Fe wnes i fwynhau llenwi’r pasbort hwn a ‘nawr bydd meddygon, nyrsys a staff chwarae yn fy neall i a’m anghenion.

“Bydd y pasbort hwn yn helpu i bobl fy neall yn yr ysbyty a pheidio â gwneud penderfyniadau drosta’i.

“Gobeithio pan gaff y nerbyn i ysbyty yn y dyfodol y bydd y tîm yn deall fy mod yn hoffi gwybod beth sy’n digwydd a bod yn barod ar gyfer gweithdrefnau.”

Meddai Janet Millward, Uwch-reolwr Pediatreg: “Rydym wrth ein bodd o allu darparu pasport eu hunain i blant a phobl ifanc, rhywbeth y mae pencampwyr anableddau dysgu yn arwain arno.

“Bydd rhoi gwybod i’n staff am eu dymuniadau, eu gwerthoedd a’u harferion beunyddiol yn ein helpu i wneud yr hyn y gallwn i ddiwallu eu hanghenion a fydd, gobeithio, yn cael effaith sylweddol a chadarnhaol ar eu hamser yn yr ysbyty.

“Gall unrhyw un sy’n teimlo y gallai eu plentyn elwa o gael pasbort eu hunain lawrlwytho copi am ddim o wefan WidgitHealth.”

Er bod Fy Mhasbort Iechyd wedi’i gynllunio gyda gwasanaethau ysbyty mewn golwg, gellir ei rannu hefyd â gwasanaethau cymorth eraill a ddefnyddir gan blant neu bobl ifanc, fel ysgolion a chymorth cymunedol.

Meddai Maria Battle, Cadeirydd BIP Hywel Dda: “Mae plant a phobl ifanc ag anableddau dysgu ac anghenion iechyd cymhleth yn aml yn ymweld ag ysbyty am resymau wedi’u cynllunio ac achosion brys, gan gwrdd â llawer o staff gwahanol mewn nifer o wasanaethau gwahanol.

“Bydd rhannu’r pasbort wrth ymweld ag ysbyty yn helpu ein meddygon, nyrsys a gweithwyr proffesiynol gofal iechyd eraill i wybod yr hyn sydd angen iddynt ei wneud i wneud yr ymweliad mor gyffyrddus â phosibl.

“Rwyf am ddiolch i Donna a Janet am eu gwaith i gael yr adnodd amhrisiadwy hwn yn ei le, ac i WidgitHealth am ei haelioni a’I gefnogaeth trwy gydol y broses.”

Mae Fy Mhasbort Iechyd ar gael i’w lawrlwytho am ddim yn Gymraeg a Saesneg o https://widgit-health.com/downloads/my-health-passport.htmto right: George Owen, 4; Cai Griffiths, 11; and Lilly Kendall, 12